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Post by fruity on Feb 3, 2014 12:39:29 GMT
Hi Ive been on this board for a few years now but dont post much, mainly because I am really ill these days. I was diagnosed with Ehlers Danlos Syndrome a few years ago now and then last year I finally got confirmation that I have Chiari Malformation and I will be going through surgery for this sometime in the next month or two at most, sooner the better really because my symptoms are getting worse all the time and people I know with this are dying and fast. There have been 8 in January alone this year.
One of the women in the support groups I go in is going through decompression surgery today and I know she is terrified, know how horrible this illness is and she knows there might be the possibility it might not help or make things worse or do nothing, she is scared she might not make it through the surgery. Is it possible to send her some reiki please her name is Antoinette Jones Beltre and she lives in Harlem New York. Anything am sure would be great. I know if things go wrong then I guess thats just life really or life with Chiari Malformation but its her young sons birthday too. Such a devastating illness.
I also worry my daughter has it as it can be hereditary and she already has EDS.
Anything at all would be great for this woman, please anything at all! All the bestx
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Deleted Member
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Post by Deleted on Feb 3, 2014 15:15:49 GMT
Hi, I will send Healing for the next 7 days, I hope it helps.
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Post by fruity on Feb 4, 2014 14:48:48 GMT
Thanks we are still waiting on news. I really hope she pulls through.
I got a date for my own operation this morning, so bizzare, they had called me yesterday and left a message and before I even got the message I had a dream I was talking to them on the phone about it, either that or I was actually having a conversation with them on the phone in my sleep, have had conversations with people before while asleep but not on the phone but who knows.
Really hoping to heard good news back about the woman I had posted for, it was her young sons birthday and she is planning to have a party for him after her surgery, really hope its all gone well. There have been 8 deaths from this illness in January alone so its a possibility. Fingers crossed its gone wellxx
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Post by fruity on Feb 9, 2014 6:50:28 GMT
Hi it seems my friend is doing ok, still a long way to go though but was glad to hear she got through her operation ok. Another person on one of the Chiari Malformation groups died the other day again, first one in February already and then last night another woman I know on FB had a stroke and its a bad one, she is not expected to pull through. Really hoping for a miracle for her, so unfair Her name is Elaine Walton please if you can send her some reiki to help her through no matter what the outcome. Its really hard to get my head round all these people dying, even the ones I dont know so well or only know of through someone else I know its like being punched in the stomach and winded all the time. It really takes the air out of you. I will be having surgery in May for my Chiari Malformation and the way things are I could pop my clogs anytime, the other night I had really bad sleep apnea, went to sleep eventually but it was one of those ones I felt like could be my last. Anyway that aside for the moment please if you can send reiki to my friend Elaine Walton she lives in Luton in London am sure it is in England anyway. Many thanks for the reiki for last timexx
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Post by Danny on Feb 18, 2014 16:48:24 GMT
OMG! I've been on this board since about 2006, with my first account and I remember you, Fruity. I'm truly sorry to hear of your illness and it must be extremely tough for you. I'm channeling healing to you as I type - and your friend, Elaine too. I hope you're managing to cope till your op. xx
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Post by fruity on Feb 28, 2014 2:30:53 GMT
Thaanks its ok such is life really, its helped me in a lot of ways nothing else would have as crap as it all is but I will be fine, more worried about my daughter as neither of us have any support from our family at all and if anything happens to me shes gonna be left on her own pretty much cause my family might as well not even exist. life just isnt that great sometimes eh but these things happen. Hope all is well with yourlsef!xx
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Post by Monica on Mar 2, 2014 20:40:32 GMT
Reiki flows to you, Fruity, daily.
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